Empowering Patient-Centric Clinical Trials Through PRIMR Videos

By: David Grew MD MPH

“Patients are confused, which leaves them feeling less inclined to volunteer their time on an investigational drug.”

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A clinical researcher who has used PRIMR videos in their trials shared this impactful feedback:

"The PRIMR educational video enhanced our clinical trial enrollment process by empowering patients with a visual understanding of trial procedures and treatment provided. Not only did it streamline discussions between patients and our team, but it also fostered a more collaborative and informed environment."

As a physician who has been involved in numerous clinical trials, I understand the immense importance of effective communication between patients and researchers. Standard of care cancer treatments can be confusing enough.  But then when you layer complex clinical trial protocols on top?  That’s enough to leave any reasonable person’s head spinning.

This dizzying swirl of new information can have damaging effects on each of the stakeholders.  Patients are confused, which leaves them feeling less inclined to volunteer their time on an investigational drug.  This may result in a missed opportunity to pursue a treatment that’s not yet on the market.  Physicians and research teams are burned out, and lack the bandwidth to explain complex trials to patients over and over.  Finally, sponsors are frustrated - trials are costly and can drag out or fail to accrue, resulting in enormous waste of invested capital.

I've witnessed the emotional toll that misunderstandings and miscommunications can take on both patients and healthcare providers. In this blog, we'll explore how PRIMR's educational videos are transforming patient-doctor communication and what that means for clinical trials.

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Visual Learning for Better Understanding

PRIMR's educational videos address the primary challenge of ensuring patients fully comprehend the big concepts and rationale for the trial they are participating in. By providing visual representations of trial procedures and treatments, patients can grasp the necessary information quickly and accurately, bridging the gap between medical expertise and patient comprehension.

• One of the primary challenges in clinical trials is ensuring that patients fully comprehend the key questions and rationale for the trial they are participating in.
• Written documents and verbal explanations, while thorough, can often fall short due to the complexity of medical jargon and concepts, and variable performance by physician and research staff.
• PRIMR's educational videos address this issue by providing visual representations of trial procedures and treatments, allowing patients to grasp the necessary information quickly and accurately.

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Empowering Patients with Knowledge

PRIMR videos empower patients by providing a comprehensive overview of the trial, from the purpose and process to potential side effects and benefits. This empowerment is reflected in patients asking more informed questions and engaging in meaningful discussions with their clinical teams, leading to better-informed decisions.

• When patients have a clear understanding of the trial they are participating in, they feel more empowered and confident in their decision-making.
• PRIMR videos provide a comprehensive overview of the trial, from the purpose and process to potential side effects and benefits.
• This empowerment is reflected in patients asking more informed questions and engaging in meaningful discussions with their clinical teams, leading to better-informed decisions.

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Streamlining Discussions and Decision-Making

PRIMR videos streamline discussions between patients and researchers by providing a clear, visual foundation that patients can refer to before, during and after consultations. This allows researchers to focus on addressing specific patient concerns and questions, resulting in a more efficient decision-making process where patients feel assured and informed.

• Clinical trials often involve lengthy and detailed discussions between patients and researchers.
• PRIMR videos streamline these discussions by providing a clear, visual foundation that patients can refer to before, during and after consultations.
• This allows researchers to focus on addressing specific patient concerns and questions, resulting in a more efficient decision-making process where patients feel assured and informed.

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Enhancing Communication and Collaboration

PRIMR videos enhance communication and collaboration between patients and researchers by ensuring both parties are on the same page regarding the trial's expectations and procedures. This alignment fosters a more collaborative environment where patients and researchers work together towards the common goal of successful trial completion.

• Effective communication is a two-way street, and PRIMR videos facilitate this by ensuring both patients and researchers are on the same page.
• This alignment fosters a more collaborative environment where patients and researchers work together towards the common goal of successful trial completion.
• Enhanced communication also means that any issues or concerns can be addressed promptly, reducing misunderstandings and increasing trial retention rates.

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Ultimately, effective communication is key to success. PRIMR’s educational videos are revolutionizing patient-researcher interactions by enhancing information alignment, boosting understanding and engagement, streamlining discussions, and fostering better communication and collaboration. 

By enabling patients to ask targeted questions and actively participate in their treatment, PRIMR is paving the way for more effective and patient-centric clinical trials. This innovative approach not only improves the trial experience for patients but also enhances the overall quality and reliability of the research.

Hire PRIMR for your clinical trial today.

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FAQs:

How are the PRIMR educational videos created, and who is involved in their development?

PRIMR videos are created by a network of medical professionals, communication experts, and multimedia designers. This collaborative approach ensures that the content is medically accurate, easy to understand, and visually engaging. The development process involves extensive research and consultation with clinical trial experts to ensure the videos effectively address patient needs and trial specifics.

What types of clinical trials do PRIMR's educational videos cover?

PRIMR's educational videos cover a wide range of clinical trials, including those for various types of cancer and other medical conditions. The videos are designed to be unique to each trial, with concepts and topics that are consistent across different trial protocols and medical disciplines, ensuring that patients receive clear and relevant information regardless of the specific trial they are participating in.

How do PRIMR videos integrate with the existing patient education and consent process in clinical trials?

PRIMR videos can be used as a preliminary educational tool to provide patients with a comprehensive overview of the trial before detailed discussions with the research team. This visual and accessible approach helps to clarify complex information. It ensures that patients are better prepared for their consent discussions, leading to more informed and confident participation in clinical trials.

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